California Pediatric Informatics Collaborative Aiming to Break Down Health Data Exchange Barriers
When it comes to effective health data sharing in the pediatric arena, there are a number of distinct challenges, which includes everything from newborn birth history, medical child abuse, differential proxy access for guardians of children, and varying state laws on adolescent consent and confidentiality rights.
To address the challenges of pediatric data sharing, pediatric informaticists within the state of California created a statewide pediatric work group called the California Pediatric Informatics Collaborative, according to this recent JAMA report.
Comprised of 16 organizations, the California Pediatric Informatics Collaborative, this effort uncovered the following six themes and challenges to implementing pediatric data sharing:
1. Technical infeasibility
2. Sensitive information leaks
3. Permissive release of information
4. Concern for inappropriate proxy access
5. Cultural awareness and education
6. Legal complexity
All institutions recognized technical infeasibility as a barrier and reported that they could only electronically share a partial list of sensitive and non-sensitive content from each category.
In order to overcome these challenges, there needs to be continued collaboration for identifying a unified approach to health information sharing that will empower patients while protecting adolescent confidentiality, according to the JAMA report.
RosettaHealth can assist with any health information challenges you might have, book a free consultation with one of our interoperability experts.